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lizartist's Cancer BlogJune 11, 2007
Hi, May 11, 2007
A few days ago, in the midst of chemo-hell, I read an email from a friend who has organized my daughter’s school community to bring groceries and dinners. The message mentioned a friend, one whose husband is recovering from lymphoma, and that this stranger would like to help me, us, now. Oh my gosh. Thanks so much for sharing this story! I’m touched. Ok, I’ll admit, I’m crying! Thank you for sharing. I want to clean someone’s bathroom. What a wonderful story. I guess there are angels all around us if we just have eyes to see. Liz – It is so great to hear from you. Glad things are going so well. What sweet angels you have in your life. February 26, 2007
Hello, all! This is Morgan, Liz’s daughter. My mom is absolutely fine. She’s having a speedy recovery. I would just like to update you all. As you may or may not know, my mom had surgery about a month ago to remove the cancer. This is how they explained it to me – “We’re taking the bad tissue out and putting new, good tissue from your mother’s belly in.” Yeah, right. They totally chopped her boob off. But I’m okay with that – it’s the fact that she’s going to do chemo that bugs me. How am I going to live without her frizzy yellow hair? It’s going to be quite a shock, but it’ll be fine. She’s a bit worried about it. She’s having her first session of chemo next Tuesday we think. Thank you guys for all your support! She gets so happy when she sees a new comment or whatever. Hey Liz and Morgan! It is so great to hear from you gals! I am glad that the surgery went well. Please keep us updated on how the chemo goes. We are thinking of you both. Hope your mom is still painting. February 1, 2007
I’m Morgan, Liz’s daughter. I would just like to give you the update as to what’s going on with my mom. As you know, she was diagnosed with breast cancer. But what you may not have known that she had surgery last Wednesday. I forget the really long word for it, but what happened is that the doctors took out the bad tissue in her breast nd put in some of her belly fat. Sounds kinda gross, I know, but it worked! She got back from the hospital this Sunday. She’s doing great, putting around the house and watching a lot of TV! She would be typing this if she could, but she just doesn’t feel like being on the computer right now. Here’s some words from mom: her centinal node came back negative and her margins are clear. It’s Greek to me! Anyway, that’s the update! Morgan – thanks so much for the update. It was so great to see Liz’s picture in the recently updated blogs and to hear she is doing well. Take lots of R&R after that surgery. We are all thinking of you two. Oh my gosh, thanks for the update. My heart sank when I read “this is morgan, liz’s daughter”. SO GLAD IT IS GOOD NEWS! Thanks for sharing and tell your mom we are all rooting for her! Go Liz! Hay what is going on with you gal? Hug Sherri December 6, 2006
So, after weeks of tense waiting, my insurance has approved the test to find out if I’m BRCA positive. How great! I can’t believe I’m excited to have a test which will help me decide if I want to have my other breast and both ovaries removed. I remember I went to do a follow visit about six months after my treatment and they had this big survey that asked a lot of questions about my mental state. You had to rank your answer by 1 to 10, i felt a lot better so most my answers were in the middle ground. But I laughed to myself thinking what my answers would of been had they given me this test six months earlier. I think they would of locked me up. What you are feeling is about the same as me, but you may want to talk to someone, it might help. I would of if my insurance had paid for it. Thanks for the update! Hello Liz! Depression is so normal in our cases. The ones that doesn’t get depress at the beginning does it at the end of treatment. Living with breast cancer is not a death sentence if you look at things from some other points. For example, once you are born the only real thing you are sure to get is death; the rest is up to you and circumstances surrounding you. Someone healthy can die by surprise, like in a car crash, at any age. Depression is really bad for all types of cancer. Try to think about the good things you have in life and enjoy them. I have learned so much from this journey. Laugh every time you can. Start laughing about your self; that will make you feel stronger. Always look at the positive side of things; they always have one. Live one day at a time, and, NEVER, worry about tomorrow. Blessings! Ragis Hi Liz, I’m going to share something with you that I never meant to bring up in this forum but it might help you to get your priorities straight. In 2000 my beautiful 36 year old daughter was killed in an automobile accident. As if that wasn’t senseless enough, the driver of the other car was drunk. She never got the time to say goodbye or to put her affairs in order. She was here one minute and gone the next. I didn’t get the chance to say one last goodbye or to tell her how much I loved her. She left three Sons and a multitude of family and friends who feel so cheated by the way she died and the suddeness of it. She lost a leg and part of one arm in the accident and had she lived she would have made the best of it, we all would have becuase that arm and leg didn’t define who she was. Chances are you won’t die of cancer, I pray you don’t and as Ragis said, you might go out tomorrow and get hit by a car, life is uncertain, and sometimes very unfair but for now cancer is the hand you’ve been dealt. Take Ragis’s advice, she knows what she’s talking about…....we’re all here to help so vent whenever you feel the need. Liz- I’m wondering how you are? Please post.
I received a note of concern from one of you fine folks, and so on Monday night I spent an hour composing a poetic diatribe against the medical profession in response. I hit the button to create the post, and all my beautifully composed text disappeared. Guess you weren’t supposed to read that. It’s taken me two days to summon the energy to re-write. November 30, 2006
So I keep having these images of dying on the operating table. I thought I’d ask if my boyfriend could hold my hand throughout the operation to make sure I don’t die. Considering what happened to your mom, I think your fears of “dying on the table” are understandable! I’m so sorry you’re going through this, and I’m so sorry you lost your mom. Please hang in there. Our minds are so powerful…just remember that those same images of yourself dying can be turned around. I know you’re feeling crappy…but maybe try visualizing yourself coming out of all this healthy, happy, and better than before. Those positive thoughts are stronger than we realize. You sound like a very strong, intelligent person, and I know there’s someone out there who could learn form your inner strength. How are you doing Liz? Haven’t heard from you in awhile. Hope you are okay. Hi Liz, November 28, 2006
The call I’d been awaiting for two months came last night. I have DCIS in the 9:00 position across from the invasive carcinoma at 12:00, far enough away that the surgeon wants to remove all the tissue in my left breast. My breasts are clocks now, apparently. They are ticking time bombs, if you believe the doctors. Oh Liz what crappy news. This time is so hard. You are still adjusting to the first bit of news when they start hitting you with the next bit of crappy news. You will make it through surgery. I think someday we will look back on the treatment they have for cancer and just shake our heads. One book described surgery, radiation and chemo as slash, burn and posion, which describes it so well. Hang in there. Take it one day at a time Liz. We are all here for you and we know a little bit what you are going through, in one way or another. I am so sorry to hear of the news. Again, I’m so sorry you have to lose your breast. It is all very terrible. Hang in there Liz. Just remember that the doctors ultimately want to save your life. If you don’t trust the one you have, by all means get a second opinion! Get a support system any way you can, if you don’t have friends and family who can help in the ways you need, maybe try a support group. Call the american cancer society, they have AMAZING people who can help in a thousand ways. And keep blogging! We’re here to help! Hi again, I just wanted to add one more thing. My husband and I see a therapist every 2 weeks…we were worried that cancer and infertility might be a lot to handle after only 6 months of surgery. Anyway, she’s amazing and helps us a lot. And she’s a 2 year breast cancer survivor herself. I have what you might call “very basic” insurance, and the visits only cost $10 each. It’s the best decision we made to go see her. I don’t know if you have access to anything like that… just a suggestion from my own personal experience. Hugs to you! ok, meant to say “after 6 months of marriage”. Ack! Chemo-brain! ; ) Thanks to all of you for your kind and tender encouragement. Never thought I’d be in this kind of hell, and I never thought I’d find such good people! The only thing that gets me through this is art and literature. I wonder if that works for other people too. My surgeon’s office at UCLA has original paintings on every wall, and they bring my soul comfort. I have just finished Howl, the great poem by Allen Ginsberg and am still reading (albeit slowly) Ulysses by James Joyce. Hard to think about cancer stuff when you’re contemplating the meaning of everything, love, relationships, what it means to be human, etc. I wish all of you surcease from pain tonight. Hi Liz, Bob, November 27, 2006
Last week I had three more areas on my left breast biopsied. Liz – I hope you received some good news. ;-) What ever comes you will handle it. You can handle it and you will. Good luck and I really hope you get good news. hugsNovember 25, 2006
So then my doctor makes an appointment for me to meet with a surgeon. Dr. Chang. Nice lady, head of the Revlon Breast Center here. She puts my mammogram up, pointing out a few more areas of concern. Hang in there Liz – this is one of the hardest parts. There are so many appointments and everything is new. Try to take one day at a time and not get to overwhelmed by everything. If you are not sure of anything be sure to ask questions. This is a good forum or any place where you can reach out to other survivors. There were so many things I found out from fellow survivors that helped me along the way. so please don’t hesitate to ask. Dear Liz, Wow, such bad news and I know it SUCKS. What a terrible welcome to your forties, and equally bad for your newly teenage daughter. Once the shock wears off a bit, it’s time to tackle the big learning curve. Well, for me, anyway, learning all about the process gave me back the tiniest sense of control. #1 piece of advice: in spite of medi-cal, you absolutely, positively must get at least a second opinion before you decide what treatment path to pursue. You are the captain of your cancer ship and one doctor’s point-of-view is not enough to give you the full perspective. My heart goes out to you and your daughter and your boyfriend. Jane |
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Liz – It is so great to hear from you. Love the new photo. Glad you are getting close to being done with chemo. That is so sweet that you guys are thinkging about getting married. I hope somehow it can work. I can’t believe the deal with your insurance. That is nuts. You might want to add a comment on Tanya’s blog, she might have some info for you with all the insurance crap she has been through.
I don’t know about the insurance thing… but you look beautiful. Hope the chemo works out. Take care.
Liz,
I’m going to put the word out to all of my friends that a dear friend of mine needs support. We will help you in any way that we can.
Love Marc